Jordin Sparks teams up with Novartis and SCDAA

From press release:

Novartis teams up with recording artist and actress Jordin Sparks and SCDAA to launch Generation S, an inspiring new sickle cell storytelling project

– Generation S offers the sickle cell community a powerful new way to share personal experiences and rewrite the story of an often-misunderstood disease

– Singer-songwriter and actress Jordin Sparks spearheads project, sharing emotional story of her stepsister’s battle with sickle cell disease

– Learn more at JoinGenS.com and register for a chance to meet Jordin live

NEWS PROVIDED BY

Novartis Pharmaceuticals Corporation

09:17 ET

EAST HANOVER, N.J., Sept. 20, 2018 /PRNewswire/ — Novartis is teaming up with Grammy®-nominated singer, film and Broadway star Jordin Sparks and the Sickle Cell Disease Association of America, Inc.  (SCDAA) to launch Generation S, a national sickle cell disease (SCD) storytelling project that will help rewrite the SCD story for generations to come. Generation S encourages anyone touched by SCD to help inspire the sickle cell community and educate the nation by sharing their story.

“Although I didn’t have the honor of knowing her throughout her journey, my stepsister Bryanna battled sickle cell disease her entire life,” said Jordin. “Even though we were stepsisters for a short period of time, it was the closest I’ve ever come to the disease and its struggles. I hope that Generation S will help to change how we think about sickle cell and I am proud to lend my voice to our collective stories.”

People can go to http://www.JoinGenS.com to share their experiences with sickle cell disease starting today through the end of November – as written stories, photos, or audio or video recordings. Submissions will start to be shared later in the fall, and the collection of stories from around the country will come to life in Feb. 2019. A few participants will also have the opportunity to meet Jordin in person and to work with a professional storyteller on a video to capture their personal experience with sickle cell disease.

“Through Generation S, we hope to help people understand more about sickle cell disease, including their family genetic risk factors for passing the disease on to their children,” said Beverley Francis-Gibson, President and Chief Executive Officer of SCDAA. “We are thankful for the opportunity to work with Novartis to share powerful stories about sickle cell disease that too often have gone unheard.”

While SCD is considered a rare disease, it is one of the most common genetic disorders in the US, and nearly 100,000 Americans are living with the condition.1,2 SCD is a lifelong condition that causes ongoing damage to blood vessels and organs.3 While people of all ethnicities can have the disease, people of African descent are disproportionately affected.4 People with SCD often experience recurrent episodes of acute, severe pain, which can eventually become chronic.5 Importantly, pain is more than a physical symptom – it can impact emotional and social wellbeing.6

“Working with the sickle cell community, we hope to educate people about the disease and raise awareness of the significant impact it has on the lives of patients and their loved ones,” said Ameet Mallik, Executive Vice President and Head, US Oncology at Novartis. “In partnership with SCDAA and Jordin Sparks, our goal is to inspire people who are touched by this difficult condition to help them to lead strong, vibrant lives.”

About Sickle Cell Disease
Sickle cell disease is a genetic blood disorder marked by painful crises, also known as vaso-occlusive crises (or VOCs). 7 These crises are the main reason why patients go to the hospital, and are linked to increased morbidity and mortality.8 Although sickle cell disease occurs predominantly in individuals of African descent, sickle cell disorders are also prevalent throughout the Mediterranean, the Middle East, parts of India, the Caribbean, and South and Central America.4,9

About Novartis
Located in East Hanover, NJ Novartis Pharmaceuticals Corporation is an affiliate of Novartis which provides innovative healthcare solutions that address the evolving needs of patients and societies. Headquartered in Basel, Switzerland, Novartis offers a diversified portfolio to best meet these needs: innovative medicines, cost-saving generic and biosimilar pharmaceuticals and eye care. Novartis has leading positions globally in each of these areas. In 2017, the Group achieved net sales of USD 49.1 billion, while R&D throughout the Group amounted to approximately USD 9.0 billion. Novartis Group companies employ approximately 125,000 full-time-equivalent associates. Novartis products are sold in approximately 155 countries around the world. For more information, please visit http://www.novartis.com.

Novartis is on Twitter. Sign up to follow @Novartis at http://twitter.com/novartis

For Novartis multimedia content, please visit www.novartis.com/news/media-library

For questions about the site or required registration, please contact media.relations@novartis.com

References
1.   Mandal A, Leger R, Graham L, et al. An overview of human genetic disorders with special reference to African Americans. Journal of Bioprocessing & Biotechniques. 2015 October 27. Doi:10.4172/2155-9821.1000e139.
2.   American Society of Hematology. State of sickle cell disease 2016 report. Available from: http://www.scdcoalition.org/pdfs/ASH%20State%20of%20Sickle%20Cell%20Disease%202016%20Report.pdf. Accessed on July 17, 2018.
3.   Steinberg M. Management of sickle cell disease. N Engl J Med. 1999;340(13):1021-1030.
4.   Jain D, Lothe  A, Roshan C. Sickle cell disease: current challenges. Journal of Hematology & Thromboembolic Diseases. 2015 Nov 10. Doi: 10.4172/2329-8790.1000224.
5.   Adams-Graves P, Bronte-Jordan L. Recent treatment guidelines for managing adult patients with sickle cell disease: challenges in access to care, social issues, and adherence. Expert Review of Hematology. 2016;9(6):541-552.
6.   Anim M, Osafo J, Yirdong F. Prevalence of psychological symptoms among adults with sickle cell disease in Korie-Bu Teaching Hospital, Ghana. BMC Psychology. 2016;4(53):1-9.
7.   Yawn B, Buchanan G, Afenyi-Annan A, et al. Management of sickle cell disease summary of the 2014 evidence-based report by expert panel members. JAMA. 2014;312(10):1033-1048.
8.   Puri L, Nottage KA, Hankins JS, et al. State of the art management of acute vaso-occlusive pain in sickle cell disease. Paediatr Drugs. 2018;20:29-42.
9.   Centers for Disease Control and Prevention. Sickle cell disease data & statistics. Last updated: September 16, 2011. Available from: http://www.cdc.gov/ncbddd/sicklecell/data.html. Accessed on August 4, 2015.

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FREE Teddy Bears! 

We are giving away two FREE Teddies left over from the 2017 Jordin Sparks Experience Teddy Bear Picnics! Bears have an inspirational notecard signed by Jordin in a removable lanyard.  All you have to do is go to www.instagram.com/themadgirlsinc and follow the directions! 

#JSE2017 Teddies from our Teddy Bear Picnics



If you’d like to secure one of these cuties, you’ll get one free as a thank you for supporting our endeavors with any tax deductible donation of $250 or more. 

❤,

The M.A.D. Girls 

Thank You Larry Fitzgerald, From Jordin Sparks

Jordin Sparks & Larry Fitzgerald. Jordin Sparks Experience 2015.
Jordin Sparks & Larry Fitzgerald. Jordin Sparks Experience 2015.

(THIS IS A REPOST FROM JORDIN SPARKS INSTAGRAM POST.)

I want to take a moment to acknowledge my friend, Larry Fitzgerald. You all know what he does on the field. His work ethic, production and focus. Then the commercials, the lights and the interviews. You know he’s one of the best in the NFL right now & definitely one of the best to ever play. But it’s what he does when the cameras are off, when the fans go home and uniform is hung up to dry for the next game.
His heart is bigger than anything you’ve seen displayed on the field. Putting the game on his shoulders, in the playoffs last year, against Green Bay? His heart is bigger. Taking it to the house in the last two minutes of Super Bowl 43? Yep, his heart is still bigger. Standing tall, at the podium, after one of the biggest disappointments in his sports career? His heart is bigger still.
No matter where he is, Larry is always wanting to make an impact on the community and the youth.

Jordin Sparks & Larry Fitzgerald. Starkey Hearing Mission 2011.
Jordin Sparks & Larry Fitzgerald. Starkey Hearing Mission 2011.

Whether it’s in his hometown of Minneapolis, the AZ community, across the country or abroad. We both traveled to Rwanda, with Starkey Hearing, to fit & give free hearing aids to anyone who needed them. Hours would pass and he, just like the incredible Bill Austin, would still be fitting kids or parents until the last person was seen. I was inspired by that and challenged to give until I can give no more.

He was my friend before anyone knew my name and has always been so supportive of me, my family, career & charity work with The M.A.D Girls & Jordin Sparks Experience. He’s been to almost every single one, with that trademark smile of his, and with a willing spirit. Looking back through these pictures, it’s amazing to see how much time has passed…and we’re still running on fumes!
Today, as you are one of three finalists up for the Walter Payton Man of the Year Award, I want to say congratulations. It would take days to list all the amazing things you do for others but I’ll let people discover that on their own. You deserve it more than anyone I know.
You may be ‘the man of the year’ to some but, to me, you’re just my confidant and friend and I’m honored to call you so.
Thank you for all you do,

~J.

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Jordin Sparks & Larry Fitzgerald. Celebrity Fight Night 2011.
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Larry Fitzgerald & Jordin Sparks. JSE Tampa 2009
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Larry Fitzgerald & Jordin Sparks. JSE Miami 2010.
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Jordin Sparks & Larry Fitzgerald. MLB Celebrity softball game. 2011.
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Larry Fitzgerald, Jordin Sparks, Calais Campbell, Rowlan Hill. JSE Arizona 2015.
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Dan Williams, Calais Campbell, Jordin Sparks, & Larry Fitzgerald. JSE Arizona 2015.

 

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Jordin Sparks & Larry Fitzgerald. 1st Down Fund event at Dominick’s Steakhouse 2016.

A Day in the Life … A Jordin Sparks Diary

jordin-0to60-nfl-play-60A Day in the Life of Jordin Sparks

How the award winning singer & songwriter sped up the quest for healthier kids at the #0to60 Event with the NFL, Fuel Up to Play 60, and the National Foundation on Fitness, Sports, & Nutrition…

6:30 AM: Rise and shine Denver! I woke up extra early this morning to get ready for today’s event. After grabbing a healthy breakfast of my shake and a banana, I met with my hair and makeup artist to get glammed for the show.

7:30 AM: I’m picked up from the hotel and driven to Allendale Elementary School in Arvada, Colorado. I marvel at the mountains we pass by during our drive – the scenery here is truly breathtaking!

8:00 AM: We arrive at Allendale Elementary, and start our sound check to make sure that our equipment is set up properly. We finish right before we get word that the kids are about to get here, so we run to a room in the back where I can get ready before the big surprise.

8:45 AM: I was a little sleepy on the way to the school this morning, but as soon as I heard the voices of all the excited students filling up the gymnasium, I perked right up! I sneak a peek at all the kids and start to get nervous. Even though I’ve performed hundreds of times, seeing the energy from the crowd always gives me an adrenaline rush.

9:15 AM: I watched the announcement of the 2016 NFL Hometown Grant from the back of the room, and heard the great news that this year, the National Foundation on Fitness, Sports & Nutrition will match the NFL’s contribution to promote health and wellness in schools through the Fuel Up to Play 60 program. The Foundation’s contribution will enable more schools to get active by adopting the Presidential Youth Fitness Program. Since playing outside and participating in sports were an important part of my childhood and my charity, The M.A.D. Girls #madkids program, I’m really happy that these school districts will be able to support their students through use of the grant money and the fitness program.

9:20 AM: My hands start to shake as I listen for the emcee to announce my name, and when he does, I run into the gymnasium to hundreds of energetic students! I can’t help but smile when I see how excited they are, and I take a few minutes to let them know why being active is so important to me. This is all being streamed live on my Facebook page…shaking and all! Finally, I get to perform “One Step at a Time” and dance with the audience, which is a perfect introduction into the next part of my appearance, which is…

9:35 AM: …the debut of my new song, which is called, “#0to60!”. I recorded this song for the new #0to60 campaign from the National Foundation on Fitness, Sports, & Nutrition and the President’s Council on Fitness, Sports, & Nutrition. We played the song while we lead the kids through some warm up stretches and then a fun exercise routine to get their hearts pumping and bodies moving! It’s surreal to see so many people being physically active to a song I recorded, and I’m glad the crowd seems to enjoy the song as much as I do!

10:00 AM: Now that the assembly is over, we head outside to participate in a physical0to60 nfl jordin play 60.jpg activity clinic with the Denver Broncos cheerleaders and Miles, the Broncos mascot. I volunteered to lead some of the exercise stations, and in the process, worked up a sweat myself! I think chasing after students should definitely count as my workout for the day…

10:50 AM: After the clinic, I meet up with a few reporters to do some interviews on behalf of the NFL, Fuel Up to Play 60, and the #0to60 campaign. I get to talk about my 3 favorite things, which is music, football, and helping kids, so the interviews are fun and go by quickly.

3:15 PM: After swinging by the hotel to grab my luggage, I get ready to fly back home. I’m exhausted, but had an amazing time premiering the song and getting active with the students. Thank you to the National Foundation, NFL and Fuel Up to Play 60 for their efforts to support students across the country. I’m excited to continue our work to inspire students and adults across the country to go from #0to60 every day!

~Jordin

For more information about #0to60, visit 0to60fitness.org.

xo,

The M.A.D. Girls

Spark A Tattoo Revolution with Jordin Sparks!

The M.A.D. Girls have partnered with Tattoos for a Cause and Jordin Sparks to help save a child’s life.  Little Zahara is in need of a bone marrow transplant.  Now through October 31st, 2016 you can help start a revolution!  Here are the ways you can help:

1.)  Go to www.tattoosforacause.com and follow your heart!  You can download a tattoo designed by Jordin Sparks and her tattoo artist of choice, A.J. Larson. It really  is beautiful and the artwork has many hidden meanings within it!

2.) “Go” to this Facebook event!  Don’t worry, you won’t get a million notifications.  It’s informational.  But when you DO “go” it shows up in your timelines and you can help create a buzzzzzz!

3.) Share these images on social media with the hashtag #sparkatattoorevolution and when you get inked with the tattoo (or color it with crayons,) take a pic and post it!

 

THANK YOU!

xo,

The M.A.D. Girls

 

Get your SMILE on with Jordin Sparks & Crest to Make A Difference

She has the  most beautiful smile we’ve ever seen.  We’re biased, but it’s true!  Now she is lending those pearly whites to help make a difference in the lives of kids and bring awareness to poor oral health and it’s connection to self-esteem in kids.  She has teamed up with Crest for their Healthier Smiles Project!  Yay for Crest and Jordin for using their platforms for good!

So take a pic and post it with #healthiersmilesproject through 9/30 and Crest will donate another 5 tubes of toothpaste.  It’s so easy! And then ask your peers…Jordin’s slogan and campaign, “I’m M.A.D. Are You?” and encourage them to do the same!

screenshot-2016-09-07-09-55-00https://www.instagram.com/p/BJ05XvNDYRx/?taken-by=jordinsparks

” Hey guys…need your help. I’ve teamed up w/ the @Crest #HealthierSmilesProject to support a toothpaste donation to @FeedingAmerica. Why? Because I found out kids w/ poor oral health are 3X more likely to miss school – we can help change that! Crest is already donating half a million tubes of toothpaste to those who need it most, but WE can donate even more! Just take & share a pic of your healthy smile w/#HealthierSmilesProject on Instagram, Facebook or Twitter through 9/30 & Crest will donate another 5 tubes, up to 100,000. Get your smile on! Learn more: http://bit.ly/HealthierSmilesProject

xo,

The M.A.D. Girls

We know that Sickle Cell Sux. Do you?

Sickle Cell Anemia

September is Sickle Cell Awareness Month and we’ve got something fun for you coming soon!  Did someone say Tattoos, a cute little girl, and Jordin Sparks?  Stay tuned!

In the meantime, read up on it.  Go here to learn about it: www.sicklecelldisease.org

Make a difference!  Check out Bold Lips For Sickle Cell, take a selfie in some lipstick and post it on social media!  Use these hashtags  #boldlipsforsicklecell and #sicklecellsux (the name of our awareness campaign.)

Or encourage someone fighting this painful disease with a kind word or gesture.

Or buy a t-shirt, put it on, and post a pic on social media with the hashtag #sicklecellsux.

xoxo,

The M.A.D. Girls